We need your help!

Elouise is one of a many children living with a rare neurological disease called H-ABC. The Foundation to Fight H-ABC was established to spread awareness about this degenerative disease and help affected children.  Our mission is two fold - to raise money for research on gene therapy treatments that could stop the degenerative effects of this disease, but to also help families with much needed resources including critical support services and access to equipment so affected children can get the therapy they need to live life to the fullest until a cure is found.    To understand this disease better, see Elouise's story in the video below.