Oct
26
9:30 AM09:30

H-abc Research Symposium

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Friday October 26, 2018. Childrens Hospital of Philadelphia. Closed meeting to discuss research status and plans for the next year with our research partners.

Description

The Leukodystrophy Center at Children’s Hospital of Philadelphia (CHOP) is excited to announce the 2018 Conference on Clinical Development in H-ABC and TUBB4A-related Leukodystrophies. Building on existing translational research platforms, this meeting seeks to define clinical outcome measures and lay the groundwork for disease-specific clinical development models to enable more rapid assessment of novel therapeutic agents in the future.

This closed-door event, organized in collaboration with the Global Leukodystrophy Initiative (GLIA) and generously supported by the Foundation to Fight H-ABC, will take place on Friday, Oct. 26, at the Children's Hospital of Philadelphia. Speakers will also be invited to attend a public lecture series on Saturday, Oct. 27, where recent advances in research and clinical management will be presented with patients and families. A networking event is planned as well.

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Play For Elouise 2018 at Manor Country Club (evening event)
Jun
1
7:00 PM19:00

Play For Elouise 2018 at Manor Country Club (evening event)

  Overlooking the golf course, join us for a fun evening with live band, live and silent auction, raffles and more.  Email contact@h-abc.org for more information or just join us on June 1.  OPEN TO CLUB MEMBERS AND THE PUBLIC.   Tickets available on www.eventbrite.com - event name Play for Elouise.   Or just pay at the door.  Price of $100 includes live band, open beer and wine bar, light fare and a small contribution to the non profit.  Auction and raffles are extra, we accept cash, credit cards and paypal.   This is not a golf event!

Overlooking the golf course, join us for a fun evening with live band, live and silent auction, raffles and more.  Email contact@h-abc.org for more information or just join us on June 1.  OPEN TO CLUB MEMBERS AND THE PUBLIC.   Tickets available on www.eventbrite.com - event name Play for Elouise.   Or just pay at the door.  Price of $100 includes live band, open beer and wine bar, light fare and a small contribution to the non profit.  Auction and raffles are extra, we accept cash, credit cards and paypal.   This is not a golf event!

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Chippin' In for a Cure - A Golf Tournament in The Villages, FL
Jun
10
12:30 PM12:30

Chippin' In for a Cure - A Golf Tournament in The Villages, FL

Join our team in The Villages, Florida who are hosting an afternoon of golf, with dinner and entertainment to follow. 

To register for this event, please open and print the registration form using the link below. After completing the form, please send it back to the address indicated at the bottom of the form. Payment is accepted via checks made payable to The Foundation to Fight H-ABC. 

REGISTRATION FORM HERE

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Play For Elouise .....again
Jun
9
6:00 PM18:00

Play For Elouise .....again

OPEN TO MEMBERS AND THE PUBLIC

Join us for a repeat performance of one of our biggest fundraising events at Manor Country Club, Rockville MD.    Members and their guests - enjoy playing golf with many area golf professionals in the afternoon.  The evening events which are open to members and the public, start at 6pm when you can heckle the club tennis Pros when they play a match, then live band in the evening starting at 7pm.  Raffles and silent auction throughout the evening.  Lite fare and open bar.  $100 per person.   This event was a huge success last year and we received raving reviews.  See flyer below for more details.

PLUS golf foursomes at several great area golf courses are up for auction.  Go to www.capitolonlineauctions.com and type in the keyword: H-abc

If you would like to sponsor this event, please complete the attached form. 

REGISTRATION FORM

play for elouise photo.jpg
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