The Foundation to Fight H-ABC
We created the Foundation to Fight H-ABC because there is currently a lack of awareness surrounding H-ABC. It affects our family and others like ours, in a very real way, but we understand that most people have never heard of H-ABC. Just because a disease is rare does not mean it should receive less attention or scrutiny. Moreover, research on similar conditions has been ground-breaking, and the research currently underway for H-ABC can potentially be applied to other neurological conditions.
Our organization is fully authorized as a non-profit charity, so all donations are tax-exempt under IRS Section 501(c)(3). See the link below for a copy of our legal notice, including tax ID number.
Our scientific advisory board includes:
Professor Mario Valentino BSc, M.Phil, PhD, Dept of Physiology & Biochemistry,
Faculty of Medicine & Surgery, University of Malta,
Steven J. Gray, Ph.D., Associate Professor, Director, UTSW Viral Vector Facility, Dept. of Pediatrics (primary), Dept. of Molecular Biology, Dept. of Neurology and Neurotherapeutics, Eugene McDermott Center for Human Growth and Development, Hamon Center for Regenerative Science and Medicine, University of Texas Southwestern Medical Center
Ernesto R. Bongarzone, Ph.D., Dept. of Anatomy and Cell Biology, University of Illinois;
Marc P. DiFazio, M.D., Medical Director, Ambulatory Neurology, Children's National Hospital System.