Help us extend the lives of these children

 We are asking for donations to fund the costs associated with research. Donations will be used for several purposes, primarily to fund the genetic research and related costs, and establishing facilities where doctors can study longitudinal patient data, critical for clinical trials.  All of this is necessary for FDA approval of any medications or treatments. Time is of the essence, as the degenerative effects of the disease are not reversible, but can be stopped if a cure is discovered. 


All proceeds go directly to efforts for curing H-ABC. Donations are tax deductible, and many employers match donations.  Online payments can be made as a single donation or recurring.

By Mail


Help us make an impact and volunteer as an advocate. We need to raise awareness, and we are in desperate need of volunteers. Contact us to learn how to join our cause and make a difference!

The Foundation to Fight H-ABC

Our organization is fully authorized as a non-profit charity, so all donations are tax-exempt under IRS Section 501(c)(3). See the link below for a copy of our legal notice, including tax ID number. 

Notice of Tax-Exempt Status

Thank you for your support