JOIN US for our fourth annual fundraiser event. This year we are raising the bar to a new level. Professional auctioneer with LIVE auction, Luxury Raffle, and more, including different and exciting auction items bringing our event to a higher level. Sponsors include Drink More Water, Roberts Oxygen, Kids After Hours and more….
Featured on ‘America’s Got Talent’ - Jeff Tract aka The Singing Trump is the most sought after celebrity impressionist in the country!. Enjoy an explosively fun evening including an array of over 100 impressions including Larry the Cable Guy, Ray Romano, Adam Sandler, George Lopez, Jeff Foxsworthy and Joan Rivers as well as politicians including Trump, Ronald Reagan, as well as cartoons (Sponge Bob, South Park), classic TV (All in the Family and the Andy Griffin Show) and finally music (Elton John, Bill Joel, Andrea Bocelli, Bruno Mars, Lady Gaga and more), paying tribute to over 50 years of music, comedy and pop culture! Call the Savannah Center in The Villages at 352 753 2270
Open to the public, to join this conference, use this link. See many families who have traveled a long way to meet the research team
Friday October 26, 2018. Childrens Hospital of Philadelphia. Closed meeting to discuss research status and plans for the next year with our research partners.
The Leukodystrophy Center at Children’s Hospital of Philadelphia (CHOP) is excited to announce the 2018 Conference on Clinical Development in H-ABC and TUBB4A-related Leukodystrophies. Building on existing translational research platforms, this meeting seeks to define clinical outcome measures and lay the groundwork for disease-specific clinical development models to enable more rapid assessment of novel therapeutic agents in the future.
This closed-door event, organized in collaboration with the Global Leukodystrophy Initiative (GLIA) and generously supported by the Foundation to Fight H-ABC, will take place on Friday, Oct. 26, at the Children's Hospital of Philadelphia. Speakers will also be invited to attend a public lecture series on Saturday, Oct. 27, where recent advances in research and clinical management will be presented with patients and families. A networking event is planned as well.
Join our team in The Villages, Florida who are hosting an afternoon of golf, with dinner and entertainment to follow.
To register for this event, please open and print the registration form using the link below. After completing the form, please send it back to the address indicated at the bottom of the form. Payment is accepted via checks made payable to The Foundation to Fight H-ABC.
OPEN TO MEMBERS AND THE PUBLIC
Join us for a repeat performance of one of our biggest fundraising events at Manor Country Club, Rockville MD. Members and their guests - enjoy playing golf with many area golf professionals in the afternoon. The evening events which are open to members and the public, start at 6pm when you can heckle the club tennis Pros when they play a match, then live band in the evening starting at 7pm. Raffles and silent auction throughout the evening. Lite fare and open bar. $100 per person. This event was a huge success last year and we received raving reviews. See flyer below for more details.
PLUS golf foursomes at several great area golf courses are up for auction. Go to www.capitolonlineauctions.com and type in the keyword: H-abc
If you would like to sponsor this event, please complete the attached form.