5 Ways to Take Action and Help Fight H-ABC

After learning about the children who suffer from H-ABC, chances are you want to do something to help. You want to make a difference in the lives of those affected by this debilitating condition. You want to have a real impact.

Rest assured that no act of kindness is too small in supporting our cause.

Anything you can do to spread awareness of H-ABC or raise funds for disease research brings us one step closer to finding a cure.

Therefore, we wanted to share with you a few ways to take action and help fight H-ABC…

These seemingly minor deeds can go a long way toward giving children with H-ABC a fighting chance, and all they require is your time! 

1) Share Resources with Friends, Family Members, Coworkers, and Others.

One of the biggest obstacles we need to overcome in this fight against H-ABC is a lack of awareness. Since H-ABC is a rare disease (i.e., one with fewer than 200,000 sufferers), many people don’t know about it.

That’s why educating others about H-ABC—even just its existence—is so important. As more and more people discover the impact this disease has on families throughout the world, interest and support are able to grow.

One of the ways to take action today is to share resources with friends, family members, coworkers, and others, making them aware of H-ABC and educating them about this disease.

How?

Here are a few ideas:

  • Send a link to our website via email, introducing others to our foundation.  

  • Share one of our blogs on social media.

  • Distribute our fact sheet to those who are interested in learning about the disease itself.

  • Direct people you know to our YouTube channel, so they can see the effects of H-ABC.

Although it may not seem like much, simply informing others about H-ABC is tremendously helpful in supporting the cause.

2) Ask for Donations in Lieu of Gifts.

Requesting donations in lieu of gifts is one of many great ways to take action and help fight H-ABC!

If you have a birthday, wedding, or other special event coming up, consider using it as an opportunity to raise funds for H-ABC research. Let friends and family members know that if they wish to mark the occasion with a gift, you’d love it if they would contribute to a cause you care about instead.

You could also make it easier for them by…

In addition to raising money for much-needed research into a cure, you’ll also be getting others involved. Plus, there’s no better gift than knowing you helped make a difference in the lives of families affected by H-ABC.

3) Use Our Hashtags on Various Social Media Platforms.

If you’re active on social media, you likely apply hashtags to the photos and posts you upload already. What you may not realize is that using hashtags on Facebook, Twitter, Instagram, and YouTube is just one of the many ways to take action and help fight H-ABC.

You see, applying hashtags is not only a fun activity but also a free, convenient, and effective way to spread awareness. Hashtags have the ability to go viral and often result in a lot of additional content. Further, they allow people from across the globe to unite around a shared cause.

By using our hashtags—#FightHABC and #SaveAChild—on photos, links, and posts, you can help spread awareness and grow our community of supporters!

4) Sign Up to Become a Peer Advocate.

If you’re eager to do more, you may want to think about signing up to become a peer advocate. In this role, you’d volunteer your time and fundraise with us!

One of the ways to take action and help fight H-ABC is to set up your own personal fundraising page and encourage others to donate. If you enjoy physical activity, create a pledge campaign and ask people to sponsor you in an obstacle course, marathon, backpacking excursion, etc. Let them know that their contributions will go toward research and help in giving children with H-ABC a fighting chance!

If you’d rather host an event to raise money for H-ABC research, you could…

  • Put together a bake sale

  • Do a car wash

  • Run a penny drive

  • Hold a raffle

  • Organize a potluck or dinner

Don’t be afraid to get creative!

5) Give While Doing Your Normal Shopping on Amazon.

Like many people, you may be under the impression that you can only donate to a cause directly. Fortunately, that’s not the case. In fact, you can assist in raising money for H-ABC research by just shopping on Amazon!

AmazonSmile makes it easy for you to support charitable organizations such as the Foundation to Fight H-ABC, and it doesn’t cost anything extra!   

Here’s how it works…

  1. Visit smile.amazon.com and log in as you would normally, you same Amazon login will work.

  2. Before you begin shopping, you’ll be asked to select a charitable organization. Simply search for Foundation to Fight H-ABC.

  3. Browse millions of products that are eligible for AmazonSmile donation. They’ll be marked accordingly.

  4. When you buy items that are eligible for AmazonSmile donation, 0.5% of your purchase will be given to the Foundation to Fight H-ABC.

That’s it!

If you’re a frequent Amazon shopper, opting to go through the AmazonSmile site is an effortless way to raise money for our cause. And every bit helps!

Takeaway

It’s a message that bears repeating: No act of kindness is too small in supporting our cause.

If you feel for those affected by H-ABC and want to make a difference in their lives, there are plenty of ways to take action today!

Help spread awareness by sharing resources with others or using our hashtags (#FightHABC and #SaveAChild) on social media. Assist in raising funds by asking for donations in lieu of gifts, becoming a peer advocate, or shopping on AmazonSmile.

However you choose to help, just know your efforts are appreciated!