We are very happy to announce that CRISPR expert at Harvard/MIT, Professor David Liu will be working with the research team at CHOP. Professor Liu’s work is highly prominent in the field having pioneered the use of engineered CRISPR Cas variants with improved specificity and targeting ability. The advantage of this approach is that bringing a truly cutting-edge technology to treat H-ABC.
On May 31st we had our best event to date. See our pictures below and thank you again to all our sponsors, our committee, all those who volunteered and our community for supporting us! We couldn’t do it without you!
Scoliosis is a side effect of H-abc. The underlying condition dramatically advances scoliosis. Below is a picture before and after surgery
We raised over $40,000 in our Play for Elouise 2018 event on June 1! Thank you everyone for all your help and support! What a great afternoon and evening!
Elouise can now stand, dance and walk with this cool new tracking system! See her dance with her Dad in the video:
We are very proud to announce we raised over $100,000 in 2017. This month we wrote a check in this amount to the Children's Hospital of Philadelphia Foundation to continue the research for a cure! Thank you everyone for your commitment to us.