2026 TUBB4A Family Conference
đź“Ś Save the Date: May 23, 2026 đź“Ś Save the Date: May 23, 2026
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📌 Save the Date: May 23, 2026 📌 Save the Date: May 23, 2026 〰️
The 2026 TUBB4A Family Conference will be hosted by the Leukodystrophy Center at Children’s Hospital of Philadelphia at the CHOP Buerger Center. Preliminary planning is underway, and families may be eligible for financial assistance for travel and accommodations. Stay tuned for registration and agenda updates.
The conference will feature clinical evaluations, research assessments, and networking activities in the days leading up to the main event. Families will also have the opportunity to apply for financial aid packages to help cover travel and accommodations, ensuring the event is accessible to all.
Stay tuned—agenda details and registration instructions will be shared in the coming weeks.
We can’t wait to bring the community together for this rare opportunity to connect, learn, and support one another!
This video includes interviews with families whose children have leukodystrophies, and highlights from the first ever Leukodystrophy Center Family Conference, held at Children’s Hospital in 2018.