The Foundation to Fight H-ABC was proud to sponsor the 2026 H-ABC / TUBB4A Family Conference, hosted by the Leukodystrophy Center at Children’s Hospital of Philadelphia. This virtual event was held on May 23, 2026, bringing together families, clinicians, researchers, and advocates from across the H-ABC community.

Designed first and foremost for families living with H-ABC / TUBB4A related leukodystrophy, the conference offers a meaningful opportunity to hear directly from those advancing research and care, while staying connected to a community that understands the journey. This event featured presentations by some of the world’s leading clinicians and scientists for TUBB4A-related leukodystrophy, along with biotechnology and pharmaceutical companies working to develop therapies, and advocacy leaders working to raise awareness and funding for tomorrow’s discoveries. 

Whether you attended the live event or were unable to join, we encourage families, caregivers, clinicians, and supporters to explore these presentations and learn more about the latest progress in research, clinical care, therapeutic development, and advocacy efforts for H-ABC/TUBB4A-related leukodystrophy