Your Gift Brings Hope. Help Us Fight H-ABC.
Your Compassion Makes All the Difference
On the surface, families affected by H-ABC/TUBB4A-related leukodystrophy may look like everyone else—but behind the scenes, life is anything but ordinary.
The Parent’s Daily Reality
They’re exhausted from endless appointments and medical research.
They’re overwhelmed by medications and care needs.
They’re terrified of what tomorrow might bring.
And still, they keep going—because they have no other choice.
“Living with this diagnosis means carrying a heavy weight every day. There is always a dark cloud in the background—the constant worry of what might come. But instead of being consumed by that fear, we’ve chosen to fight. To search for answers. To believe in progress. And above all, to never lose sight of the light Whitney brings into the world.”
Where You Come In
You can help. Your donation—no matter the size—helps fuel research toward a cure.
A cure that can stop the progression.
A cure that could save a child’s life.
The Clock is Ticking
Some families have already lost their children to H-ABC. Others are racing against time.
They can’t afford to wait—and neither can we.
PLEASE DONATE TODAY
This is what rare disease looks like
The Foundation to Fight H-ABC is a 501(c)(3) nonprofit organization dedicated to advancing research, supporting families, and accelerating the path to a cure for H-ABC and other TUBB4A-related leukodystrophies. Your tax-deductible donation directly supports critical medical research, family outreach, and global awareness efforts.
All donations are tax-deductible to the extent allowed by law. EIN 81-0950905