Your Donation Brings Hope
Help Us Fight H-ABC
Meet the Families Living with H-ABC
Meet Ben, Elouise, Whitney, and Tilyn.
Each lives with H-ABC/TUBB4A-related leukodystrophy, but it’s their families who carry the weight beside them every day, hoping and fighting for a cure.
Ben and Elouise have been navigating this diagnosis for over a decade. Ben is the oldest person known to be living with H-ABC. Whitney and Tilyn are just six years old, diagnosed within the last two years. Their timelines differ, but their families face the same daily reality: complex care, endless questions, and a future full of uncertainty.
What they need most is support—not just from medicine, but from people. A community that shows up, offers strength, and pushes research forward.
That’s where you come in.
Your support fuels care, funds vital research, and gives these families what they need most: hope that a cure is not just possible—but coming.
Watch the video below to see why this fight matters. Every face you see is a reminder of what we’re working toward—and why we can’t stop now.
The Clock is Ticking
Some families have already lost their children to H-ABC.
Others are racing against time.
They can’t afford to wait—and neither can we.
Your support today brings hope closer to every family fighting this relentless disease.
The Foundation to Fight H-ABC is a 501(c)(3) nonprofit organization dedicated to advancing research, supporting families, and accelerating the path to a cure for H-ABC and other TUBB4A-related leukodystrophies. Your tax-deductible donation directly supports critical medical research, family outreach, and global awareness efforts.All donations are tax-deductible to the extent allowed by law. EIN 81-0950905