Volunteer with the Foundation to Fight H-ABC
Join the Fight. Become a Volunteer.
The Foundation to Fight H-ABC is powered by the compassion, skills, and commitment of volunteers. Whether you're helping organize events, spreading awareness, sharing our story, or lending your professional talents—we have a place for you.
Volunteering with us means becoming part of a community determined to change the future for those affected by H-ABC and other TUBB4A-related leukodystrophies.
Thanks to the individual actions of good-hearted people like you, we’ve raised national awareness and generated nearly $100,000 annually to support critical research. Every step forward has been made possible by volunteers.
No act of kindness is too small.
Every donation, every post shared, every like, tweet, or volunteer hour brings us one step closer to a cure—one that children living with H-ABC so urgently need.
We understand your time and resources may be limited. That’s why we’ve made it simple to sign up and get involved in a way that works for you.
All it takes is a little bit of your time—and a big heart.
Featured Volunteer Opportunities
Volunteer Scientific Advisor
The Foundation to Fight H-ABC seeks a Volunteer Scientific Advisor to provide scientific guidance and strategic insight that advances research, education, and advocacy efforts for individuals and families affected by H-ABC/TUBB4A-related leukodystrophy.
Volunteer Fundraising & Development Lead
The Foundation to Fight H-ABC seeks a Volunteer Fundraising & Development Lead to provide fundraising leadership, creative ideas, and hands-on support that advances research, education, advocacy, and family support efforts for individuals and families affected by H-ABC/TUBB4A-related leukodystrophy.
Other Volunteer Opportunities
Event Support
Help plan, organize, or staff local fundraisers and awareness events.
Awareness Campaigns
Spread the word about H-ABC, distribute materials, and represent the Foundation in your community.
Social Media
Are you a graphic designer, writer, researcher, or social media pro? We welcome your talents.
Community Outreach
Connect with new families, share resources, and offer encouragement as someone who understands.
Fundraising Champions
Host a fundraiser or peer-to-peer campaign—every dollar helps accelerate research.
Ready to Get Involved? Sign up below.
Complete the Volunteer Interest Form below and tell us how you would like to help. For most volunteer opportunities, no resume is required.
Volunteers interested in the Volunteer Scientific Advisor or Volunteer Fundraising & Development Lead positions should also submit a resume, CV, or summary of relevant experience to help us better understand their background, skills, and interests.
Questions may be directed to:
Email: contact@h-abc.org
Phone: 240-472-2770