Volunteer with the Foundation to Fight H-ABC
Join the Fight. Become a Volunteer.
The Foundation to Fight H-ABC is powered by people who care. Some volunteers provide professional expertise. Some help with events, outreach, fundraising and social media. Others simply share a post, tell a friend, or help us connect with another family.
Every action matters.
When you volunteer with us, you become part of a community working to advance research, raise awareness, support families, and create a future with more answers, more connection, and more hope for individuals affected by H-ABC/TUBB4A related leukodystrophy.
Volunteer Opportunities
Event Support
Help plan, organize, or staff local fundraisers and awareness events.
Awareness Campaigns
Spread the word about H-ABC, distribute materials, and represent the Foundation in your community.
Creative & Communications Support
Are you a graphic designer, writer, researcher, or social media pro? We welcome your talents.
Community Outreach
Connect with new families, share resources, and offer encouragement as someone who understands.
Fundraising Champions
Host a fundraiser or peer-to-peer campaign as every dollar helps accelerate research.
Family Stories
Share a photo, update, milestone, or everyday moment from your family’s experience with H-ABC/TUBB4A related leukodystrophy to help others feel seen, connected, and less alone.
Featured Opportunities
Fundraising & Development Lead
The Foundation to Fight H-ABC seeks a Volunteer Fundraising & Development Lead to provide fundraising leadership, creative ideas, and hands-on support that advances research, education, advocacy, and family support efforts for individuals and families affected by H-ABC/TUBB4A.
Volunteer Scientific Advisor
The Foundation to Fight H-ABC seeks a Volunteer Scientific Advisor to provide scientific guidance and strategic insight that advances research, education, and advocacy efforts for individuals and families affected by H-ABC/TUBB4A-related leukodystrophy.
Meet the People
Helping Move Our Mission Forward
Behind every step of progress is a community of people who care deeply about families affected by H-ABC/ TUBB4A. Meet some of the individuals helping the Foundation grow awareness, support research, and strengthen connections across the H-ABC community.
Choose How You Want to Help
Whether you have a few minutes, a specific skill, or time to take on a larger role, there is a place for you in this work.
Ready to get involved?
Complete the Volunteer Interest Form below and tell us how you would like to be involved, no resume is required. We simply want to learn about your interests, availability, and the ways you may want to help.
Volunteers interested in scientific advising, fundraising leadership, or other professional roles are requested to also submit a resume, CV, or short summary of relevant experience.
Questions may be directed to:
Email: contact@h-abc.org
Phone: 240-472-2770