Join Us. Make a Difference - Volunteers Needed

Join the Fight. Become a Volunteer.

The Foundation to Fight H-ABC is powered by the compassion, skills, and commitment of volunteers. Whether you're helping organize events, spreading awareness, sharing our story, or lending your professional talents—we have a place for you.

Volunteering with us means becoming part of a community determined to change the future for those affected by H-ABC and other TUBB4A-related leukodystrophies.

Thanks to the individual actions of good-hearted people like you, we’ve raised national awareness and generated nearly $100,000 annually to support critical research. Every step forward has been made possible by volunteers.

No act of kindness is too small.
Every donation, every post shared, every like, tweet, or volunteer hour brings us one step closer to a cure—one that children living with H-ABC so urgently need.

We understand your time and resources may be limited. That’s why we’ve made it simple to sign up and get involved in a way that works for you.

All it takes is a little bit of your time—and a big heart.

Graphic with the message 'You Can Make a Difference' promoting volunteering to support families and fund cures, featuring diverse illustrated volunteers and hearts.

Ways You Can Help

Event Support
Help plan, organize, or staff local fundraisers and awareness events.

Advocacy & Outreach
Spread the word about H-ABC, distribute materials, and represent the Foundation in your community.

Professional Skills
Are you a graphic designer, writer, researcher, or social media pro? We welcome your talents.

Family Support
Connect with new families, share resources, and offer encouragement as someone who understands.

Fundraising Champions
Host a fundraiser or peer-to-peer campaign—every dollar helps accelerate research.

Here’s How to Get Started…

Step 1: Decide you are ready to join the fight and help save a child’s life.

Step 2: Complete the Volunteer Sign-up Form below.

Step 3: Check your email for a welcome, tips, and start raising awareness!

Just by being here—reading this—you’ve already helped spread awareness of H-ABC.

You are already making a difference.

Any further action you take will expand our reach and help rally even more support toward finding a cure.

Our mission is only made possible by people like you—willing to stand with us and fight.

Volunteer Sign-up Form