Volunteer Spotlights

Silhouette of a diverse family with children, including a person in a wheelchair, holding hands outdoors against a blue sky.

The Foundation to Fight H-ABC is strengthened by volunteers who bring their time, talents, compassion, and commitment to the H-ABC/TUBB4A related leukodystrophy community.

Our volunteers support the mission in many ways, including awareness, education, research support, storytelling, outreach, and community connection. Each person helps expand visibility, strengthen support, and move the Foundation’s work forward.

Social Media Storyteller and Awareness Advocate

Meet Sophia here

Young woman with long wavy brown hair smiling in an outdoor setting with greenery in the background.

Sophia Teitelbaum

Graduate wearing a white shirt, maroon tie, and graduation cords, standing indoors.

Scientific Advisor and Research Advocate

Meet Fernando here

Fernando Ibarra

A woman with light skin, light brown curly hair, and blue eyes sitting in the back seat of a car, smiling, wearing a dark green top, a beige crochet cardigan, a necklace with a star-shaped pendant, and a seatbelt.

Elouise’s Auntie and Foundation Website Lead

Karen L. Brandt