Volunteer Spotlights
The Foundation to Fight H-ABC is strengthened by volunteers who bring their time, talents, compassion, and commitment to the H-ABC/TUBB4A related leukodystrophy community.
Our volunteers support the mission in many ways, including awareness, education, research support, storytelling, outreach, and community connection. Each person helps expand visibility, strengthen support, and move the Foundation’s work forward.
Social Media Storyteller and Awareness Advocate
Sophia Teitelbaum
Scientific Advisor and Research Advocate
Fernando Ibarra
Elouise’s Auntie and Foundation Website Lead