Meet Sophia Teitelbaum

Elouise’s Friend and Social Media Awareness Advocate

“Sharing Elouise’s story is one small way I can helps bring more awareness, support, and hope to families affected by H-ABC”
— Sophia, Elouise’s friend since kindergarten

Sophia Teitelbaum is a current student at the University of Maryland studying Elementary and Special Education. A lifelong friend of Elouise’s since kindergarten, Sophia brings both heart and purpose to her volunteer work with the Foundation.

Through her management of the @elouisesstory TikTok page, Sophia helps share Elouise’s story, raise awareness, and connect more people to the H-ABC/TUBB4A related leukodystrophy community. She is passionate about using TikTok, Instagram, and other social media platforms to expand understanding, support, and hope for families affected by H-ABC.

Impact Focus: Growing awareness through storytelling and social media outreach.