Legislative Advocacy

🛠️ Legislative Advocacy Page Coming Soon

🏛 Legislative Advocacy

This section is currently under construction.

We are working to build a comprehensive page outlining our legislative priorities, including:

• Renewal of the Rare Pediatric Disease Priority Review Voucher (PRV) Program

• Support for the Give Kids a Chance Act and the Accelerated Kids Access to Care Act

• Advocacy for NIH, FDA, and CDC funding for rare diseases

• Expansion of newborn screening programs