Reach out and contact us: We really want to hear from you! To contact us, please email or write to us with questions or requests
Volunteers: We are actively looking to recruit more people who are committed to finding a cure for H-abc/Tubb4A related leukodystrophy.
Families: We are eager to help in any way possible, whether you are a patient, caregiver, researcher or medical professional looking for answers.
email address:|
contact@h-abc.org
Mailing address:
Foundation to Fight H-ABC
15901 Sycamore Lane
Rockville MD 20853
Your Journey
Use the form below to tell us your story and your H-ABC journey, tell us about your diagnosis. We want to understand the hurdles better to help and data is paramount to better understanding.