Meet Our Scientific Advisors and Board

The Foundation to Fight H-ABC/TUBB4A is guided by world-class scientific experts and a committed board of parents and professionals who are united by one purpose: to bring hope, support, and solutions to families facing H-ABC/TUBB4A-related leukodystrophy.

Our Scientific Advisory Board includes leading researchers and clinicians in neurology, genetics, and rare diseases. They provide critical insight and ensure that our research funding is guided by rigorous science and focused on the most promising therapeutic pathways.

Our Board of Directors brings real experience, compassion, and strategic leadership to the mission—driving awareness, advocacy, and action every day. Together, this team leads with heart, expertise, and an unshakable commitment to the children and families affected by H-ABC/TUBB4A-related leukodystrophy.

Board Members, Advisors and Financials

Key Scientific Advisors:   

  • Director of the Leukodystrophy clinic at the Massachusetts General Hospital; Associate Professor of Neurology at Harvard Medical School. Executive Committee member of the Global Leukodystrophy Initiative.

  • Associate Professor, Director, UTSW Viral Vector Facility, Dept of Pediatrics, Dept of Molecular Biology, University of Southwestern Medical Center.

  • President, Medical Staff, Medical Director, Ambulatory Neurology, Children's National Hospital System.

  • Dr Chung is a clinical and molecular geneticist and the Chief of the Department of Pediatrics at Boston Children’s Hospital and Harvard Medical School.

Board Members:

  • Britt Sloan co-founded the Foundation to Fight H-ABC/TUBB4A in 2015 alongside his wife, Michele, after their daughter Elouise was diagnosed. He brings over 40 years of experience in sales and marketing and has successfully owned and operated his own business. His leadership guides the Foundation’s mission to support families and accelerate research.

  • Michele Sloan co-founded the Foundation to Fight H-ABC/TUBB4A in 2015 with her husband, Britt, following their daughter’s diagnosis wiht H-ABC. She has a strong background in finance, with expertise in valuation and feasibility analysis. Michele combines professional skills with a passionate commitment to advancing research and supporting families.

  • William Miller serves as Secretary and is a corporate attorney specializing in life sciences. His expertise in strategic transactions and corporate governance strengthens the Foundation’s leadership and helps ensure effective growth and compliance.

  • Christopher Drescher is a Board Member with over 30 years of experience in corporate strategy and scientific business development. He advises on scientific advancements, grant management, and negotiation, guiding the Foundation’s funding efforts.

  • Diane Gooley provides strategic guidance in program development with a focus on digital technology. As a Board Member and finance advisor, her expertise helps expand the Foundation’s impact through innovative solutions.

  • Robert Ziakro, former Logistics Manager at General Motors, leads fundraising efforts. With extensive experience at St. Jude’s Hospital, he is dedicated to raising critical support for research and families affected by H-ABC.

Dedicated to Accountability, Advocacy, and Action.


VIEW THE THE FOUNDATION’S 501(c3) STATUS & FINANCIALS
TAX ID 81-0950905