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Featured
May 28. 2025 ~ Upcoming ULF Conference
May 28. 2025 ~ Upcoming ULF Conference
What a Groovy Fundraiser!
What a Groovy Fundraiser!
January 13, 2024 ~ Drug Repurposing
January 13, 2024 ~ Drug Repurposing
Wishing Connor well!
Wishing Connor well!
Meet Ben - Living Joyfully with Purpose!
Meet Ben - Living Joyfully with Purpose!
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Featuring another family recently diagnosed........
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Testimony directly from one of our Leukodystrophy patients!
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*** September is Leukodystrophy Awareness Month ***
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National H-abc/Tubb4a Awareness Day
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First clinical trial for H-abc/Tubb4a Leukodystrophy
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New Scientific Advisor
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Remembering Alice
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Updates on Preclinical Trial Readiness
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Mira's Story
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How Microtubules work and what causes the disruption in the Tubb4a gene causing H-abc/Tubb4A related leukodystrophy
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Promising Pathway Act
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Peace of Woodstock Fundraiser
A Year in Review
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FDA Patient Listening Session
Seth's Story
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Welcome Dr. Gerald Raymond to our Scientific Advisory Board
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Welcome Dr. Florian Eichler to our Advisory Board
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SHOE DRIVE
Fitkin Family Support for our H-ABC Family
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Global Genes Grant for H-ABC
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PRESS RELEASE!
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Martin's Story
PENN PLAZA NYC!
PENN PLAZA NYC!
How Covid-19 Impacted Us
How Covid-19 Impacted Us
Understanding the TUBB4A Gene: What It Is and How It Relates to H-ABC
Understanding the TUBB4A Gene: What It Is and How It Relates to H-ABC