Living with H-ABC/TUBB4A:Through the Eyes of Caregivers

Written By Michele Sloan

Five families share their experiences of caring for a loved one with H-ABC/TUBB4A, offering a personal look at the challenges, responsibilities, and love that are part of everyday life with this rare disorder.

Together, their experiences underscore an important message:

“Caregivers care so much for the people they love. They should not have to carry it alone.”


Living with H-ABC/TUBB4A from Caregiver’s eyes: A Video from five Foundation to Fight H-ABC families.

Michele Sloan https://h-abc.org
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