Fall Wins for the H-ABC Community: Progress, People & Momentum
🎾 Community in Action: Pickleball Fundraiser Success
One of the most energizing moments this season was the Dill Dinkers Pickleball Tournament, where players, families, volunteers, and supporters came together with passion and purpose. It was more than just a fundraiser - it was a celebration of community.
Thanks to everyone who played, donated, organized, and cheered, we raised $21,000 to support H-ABC families, research, and awareness efforts. The event featured near sell-out silent auction items, a lively raffle, and an incredible sense of unity. It was a powerful reminder that when people understand our mission, they want to be part of it. 🎥 Watch the Slideshow Here
👩⚕️ Welcoming Two New Scientific Advisors
This fall, we were honored to welcome two outstanding doctors to our Scientific Advisory Team. Their expertise in neurology, leukodystrophies, and patient care strengthens our ability to guide research, support families, and advocate for better treatment pathways.
These advisors will help us:
Shape research priorities
Improve clinical understanding and care
Build stronger partnerships with medical institutions
Support innovation in treatment strategies
Their insight will guide our future in meaningful ways. By adding these experts, we are not only growing our team, we are increasing our impact.
💛 Community Strength Is Our Foundation
What makes our foundation unique is not just the work we do, but the people behind it. Families who share their stories. Volunteers who give their time. Donors who believe in a future where H-ABC is understood, treatable, and supported. Advocates who raise their voices so families aren't alone.
This fall reminded us that community is our greatest asset - and our greatest source of strength. Because of this community, we are not just raising awareness - we are driving real change.
🌅 Looking Ahead: A Season of Impact
As we move into November, we’re preparing for one of the most meaningful times of the year: Giving Season. It’s a time to reflect, to give thanks, and to show the world why rare disease advocacy and research matter.
In the coming weeks, we’ll be sharing:
Stories of gratitude and hope
The real impact of donations and support
How Giving Tuesday fuels progress for families and research
Ways you can help us build even more momentum
The progress we’ve made this fall sets the stage for something powerful.
✅ Together, We’re Moving Forward
Thank you for being part of every win, every connection, and every step forward. Whether you participated in the fundraiser, shared a post, made a donation, or simply stood with our community - you are part of our progress.
This fall has been full of energy, growth, and hope - and we’re just getting started.
Stay tuned… the season of impact is coming. 💛
💛 Want to Make a Difference Right Now?
Your support makes life-changing progress possible—for research and for families who need hope. If you’d like to help us continue funding research and supporting families, please consider donating or sharing our mission.