NBC News Highlights the Fight Against H-ABC
In July, the Washington 4 NBC News brought national attention to the rare and challenging disease H-ABC/TUBB4A leukodystrophy. This powerful coverage sheds light on the daily struggles faced by affected families, the ongoing search for treatments, and the hope fueled by relentless advocacy and research.
The segment featured the personal story about the Sloan family’s battle with H-ABC, showcasing their resilience and the urgent need for greater awareness and support. It also highlighted the critical role of the Foundation to Fight H-ABC in advancing research and providing resources.
This national spotlight not only raises awareness but strengthens the community’s resolve to continue pushing toward a cure. We are grateful to NBC News for sharing these voices and helping amplify the urgent message.
Watch the full story [HERE] and join us in supporting families affected by H-ABC.
