SAVE THE DATES! JUNE 25 – 27, 2020, THE ULF WILL HOST A VIRTUAL CONFERENCE.
A special webinar on H-ABC will be held at 1PM Central on June 27th. (Webinar will be streamed through YouTube, time and date subject to change. Please see the ULF website to register and receive a join link. For updates and official times click here: ulf.org/news/family-conference/)
Topics that will be covered include:
H-ABC
ADLD
MLC
Undiagnosed
Refsum
PMD
Adult onset leukoencephalopathy
AGS
MLD
Alexander Disease
ALD/AMN
LBSL
VWM
CTX
Krabbe
4H
Newborn Screening Advocacy
Integrative Medicine
Feeding Tubes and Blended Diets
Respirators
Genetic Counseling for the Leukodystrophies
Physical Therapy
Find out more about this event here: ulf.org/news/family-conference/