BOARD members and advisors

KEY SCIENTIFIC ADVISORS:   

  • Florian S. Eichler, MD. - Director of the Leukodystrophy clinic at the Massachusetts General Hospital; Associate Professor of Neurology at Harvard Medical School. Executive Committee member of the Global Leukodystrophy Initiative.

  • Steven J. Gray, PHD. - Associate Professor, Director, UTSW Viral Vector Facility, Dept of Pediatrics, Dept of Molecular Biology, University of Southwestern Medical Center.

  • Marc P. DiFazio, MD - President, Medical Staff, Medical Director, Ambulatory Neurology, Children's National Hospital System.

  • Gerald Raymond, MD - Dr. Raymond is a clinical geneticist and neurologist at Johns Hopkins where he is also a professor of genetic medicine and neurology. He obtained his MD at the University of Connecticut and was trained in Pediatrics at Johns Hopkins Hospital and Neurology at the Mass. General Hospital.

KEY board members:   

  • Michele and Oscar Sloan - Founders, Foundation to Fight H-ABC.

  • Christopher Drescher - Corporate Strategist, Business Developer focused on scientific discovery. Thirty years of advisory expertise related to scientific advancement, grant agreements, and related negotiations.