The Foundation to Fight H-ABC
We created the Foundation to Fight H-ABC because there is currently a lack of awareness surrounding H-ABC. It affects our family and others like ours, in a very real way, but we understand that most people have never heard of H-ABC. Just because a disease is rare does not mean it should receive less attention or scrutiny. Moreover, research on similar conditions has been ground-breaking, and the research currently underway for H-ABC can potentially be applied to other neurological conditions.
Our organization is fully authorized as a non-profit charity, so all donations are tax-exempt under IRS Section 501(c)(3). See the link below for a copy of our legal notice, including tax ID number. Please note we are now a public 501(c)(3), evidence can be provided upon request.
Our scientific advisory board includes: Steven J. Gray, Ph.D., Dept. of Opthalmology Gene Therapy Center, University of NC; Ernesto R. Bongarzone, Ph.D., Dept. of Anatomy and Cell Biology, University of Illinois; and Marc P. DiFazio, M.D., Medical Director, Ambulatory Neurology, Children's National Hospital System.