It is unusual to meet a Tubb4a patient who is so articulate! Killian does a fantastic job of telling us more about his leukodystrophy on Utube, and what better timing than during September Leukodystrophy Awareness Month! Thank you Killian, you are an amazing young man!
Testimony directly from one of our Leukodystrophy patients!
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Featuring another family recently diagnosed........
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