Leukodystrophy Centers and Physicians
Children’s Hospital of Philadelphia, Philadelphia, PA
Dr Adeline Vanderver; Dr Amy Waldman - 1 800 TRY CHOP
Children’s Hospital of Pittsburgh – Pittsburgh, PA
Dr. Maria Luisa Escolar; chp.edu
Kennedy Krieger Institute, Baltimore MD.
Dr Ali Fatemi; 443 923 2750
Massachusetts General Hospital – Boston, MA
Dr. Florian Eichler; Contact: massgeneral.org
Children’s Healthcare of Atlanta, GA
Dr. Stephanie Keller, Program Director. 404 785 5437
University of Utah Health, Salt Lake City, UT
Dr. Joshua L. Bonkowsky, Division Chief of Pediatric Neurology; 801 213 3599
Stanford University Medical Center – Palo Alto, CA
Dr. Keith Van Haren; Contact: med.stanford.edu
Leukodystrophy Expertise at Baylor College of Medicine & Texas Children’s Hospital, Houston TX; 832 824 1000
Located at 6621 Fannin Street, Houston, TX, this clinic offers multidisciplinary care for patients with genetically inherited white matter disorders.
Myelin Disorders Biorepository Project (MDBP): A research initiative aimed at defining novel patient groups with leukodystrophies and uncovering their genetic causes.
GLIA-CTN EHR Data Extraction Project: This project focuses on developing a comprehensive library of clinical data for individuals with confirmed leukodystrophy diagnoses, enhancing understanding of disease progression and outcomes.
University of Minnesota Masonic Children’s Hospital – Minneapolis, MN
Dr. Jakub Tolar, Director, Stem Cell/Gene Therapies; Contact: Phone: (612) 625-2912
Leukodystrophy Care Network (LCN)
Certified Centers Include:
Ann & Robert H. Lurie Children’s Hospital of Chicago, IL
Children’s Healthcare of Atlanta, GA
Columbia University NYP Morgan Stanley Children’s Hospital, NY
Duke Children’s Hospital, NC
Golisano Children’s Hospital at University of Rochester, NY
Kennedy Krieger Institute, MD
Lucile Packard Children’s Hospital at Stanford, CA
Massachusetts General Hospital, MA
Mount Sinai Hospital, NY
Nationwide Children’s Hospital, OH
Primary Children’s Hospital, UT
UC Davis Health System, CA
UPMC Children’s Hospital of Pittsburgh, PA