Tabriz’s Story

A young girl with a ponytail, sitting on a three-wheeled adaptive bicycle with a smile. She is wearing a purple t-shirt, patterned leggings, and sneakers.

Hi, my name is Tabriz and I just turned 6.

I live on the little French island of New Caledonia in the South Pacific.
I live with my 3 sisters, 2 brothers, and my Mom (plus 1 dog, 1 cat, fish, and 2 rabbits).

Next year I’m starting my first year of elementary school, and I’m so excited to finally learn to read and write.

I love going for “walks” (mine look more like “rides”) with my friends and family.
I love meeting new people, telling stories, and I really love pink, unicorns, dancing, and singing.

This year I started a weekly sports training program, and one day I will win the Olympics. Just remember my big smile and crazy curly hair—you’ll see me on TV.

Smiling young girl in a Disney-themed t-shirt sitting on a beach blanket near the water with trees and people in the background.

This is my dream. It’s real! And you can help make it possible by helping find a cure for the disease I was born with: TUBB4A-related Leukodystrophy (H-ABC).

Apparently my genes decided to do their own little thing (kind of like me), and now I’m not developing the way I should be.

My family helps me keep every ability I can until a cure is found. But that can’t happen without your support, because the brave scientists working to help me—and the 150 people worldwide with H-ABC—need funding to continue their research.

Thank you for anything you can do to help.
Thank you for helping make my dreams come true.

Tabriz (aka Tabtab)

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