H-ABC / TUBB4A Leukodystrophy Community BLOG

Michele Sloan Michele Sloan

Meet Ben - Living Joyfully with Purpose!

Ben Rosenberg, a vibrant 28-year-old with an unbreakable spirit, was diagnosed in the summer of 2024 with TUBB4a-related Leukodystrophy after a lifetime of uncertainty. This rare neurological condition affects his movement, speech, and balance, but Ben embraces life with a philosophy that inspires everyone around him: "Stay joyful and do the best you can with what you got."

LINK TO BEN’S STORY

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